One year tomorrow…

One year tomorrow…

One year tomorrow….I need to say that again. One year tomorrow. This journey began one year ago tomorrow. I watched my Bean dance today…with every joint of in her body – her hips, her knees, her elbows, her wrists, her ankles, her sholders, her neck…
One year ago tomorrow this journey began. But today, she danced!

Education

It is time for me to educate myself about Systemic Juvenile Idopathic Arthritis…What do I know, what can I handle, how much I don’t know or where to look. Right now – all I would like to do is be sad, I’m not ready to mobilize yet. I see/read of all these families the mobilize around their sick child and pull it together and do the extraordinary…BUT I HAVE FOUR CHILDREN! It isn’t fair…but as Scar said…”life’s not fair”