One year tomorrow…
One year tomorrow….I need to say that again. One year tomorrow. This journey began one year ago tomorrow. I watched my Bean dance today…with every joint of in her body – her hips, her knees, her elbows, her wrists, her ankles, her sholders, her neck…
One year ago tomorrow this journey began. But today, she danced!
Puppy had his allergy testing today. 4 scratch spots on his back – he’s allergic to nothing! What does it all mean…guess the boy can have milk…after almost 4 years…talk about realignment – we went out for milkshakes!!
He did have an off day after the testing. (OK he got his H1N1 after it too). He cried all the way to school, and all the way into school – it was very sad. Even on the way home he continued to be sad.
The older kids tried to help distract him. Belle says to him – “Puppy where do you live?” Puppy answers – “Earf!!”
Bob then says to him – “Puppy where do Grammy and Grandpa live?” Puppy answers – “Mars!!”
It all came full circle.
Did I speak to soon? At 3am Bean walked into our room…with 103.2 fever, back pain and knee pain. Is it related – is it something different?
Friday night Bean got her third dose of methotrexate. Again she didn’t have any rection…I have to say handing my daughter 12 pills brings me to tears…it is too much.
But she didn’t have any reaction. Life is good.
Puppy is really cute. He cracks me up often – just a few from today.
Today he came home singing: “My Mommy lies over the ocean, my Mommy lies over the Sea, My Mommy lies over the ocean, my Mommy lies over the Sea, bring back my Mommy to me.”
On the way to school I said to Puppy “Puppy, I’m so proud to be your Mom.” Puppy said, “Mommy, I’m so proud to be your awesome, cool, smart and hansome puppy!” ** yes – the boy said puppy, not his name, not son, not boy…Puppy. The kid makes me smile!
Tonight I was helping Bob with a project for school. Tomorrow he is giving a presentation to his 3rd grade class about the portion of the bible that is read in synagouge this weekend. It is the story of Abraham, the angels, the story of Lot and his wife – the birth of Isaac and the almost sacrafice of Isaac. He is giving this presentation 100% in Hebrew.
Bob has done a great job. The other night he sat and wrote the entire thing in English – then translated it into Hebrew. Reviewed it with his teacher and tonight I offered to help him re-write it as his handwriting is not the clearest.
As I began to pen the second page my first born son turned to me and said: “Mommy, I really appreciate your helping me – I love you!”
Should I say that again:
“Mommy, I really appreciate your helping me – I love you!”
We all hope that our children appreciate what we do for them…that if they don’t today, maybe they will some day….but today, my son appreciated it today…AND TOLD me.
May this moment sink in and may the memory stay close to the top layer…especially the next time he says: “I hate you Mommy!!” … But as for today, November 5th 2009…my son said:
“Mommy, I really appreciate your helping me – I love you!”
Puppy had a 1/2 day at school during the field trip. So he went home with his best bud E. E’s mom called me and said that Puppy told her he couldn’t have milk – that he was allergic to it. I told her we don’t give him milk – but things with milk in it are fine.
30 minutes later I got a call saying Puppy is insisting that he can have chocolate milk. I was at work – I explained to her that he didn’t understand chocolate soy milk vs. regular soy milk – though he did understand milk vs. soy. But it has been so long that he has been having dairy…not to worry. Go ahead – let him have it.
Hours later Puppy’s face was swollen, hot, almost like it was on fire – his ears too. I took his temprature to make sure he didn’t have a fever. He didn’t – his body was cool.
Boy did I feel aweful. He has an appointment with the allergest, for the first time on November 9th.
I got to join Belle on her 2nd grade field trip to the White House. We were all excited – the history, the amazingness…just increadible. The kids were disapointed they didn’t get to see more, but I thought it was awesome…
BUT – one of the most memerable parts was the East Room. One of the children asked if the chairs were gold – the secret service agent who was in the room answering questions – responded – “no, they are plastic – here feel!” LOL I was amazed that this stately room had plastic gold chairs! Amazing:)
Bean got her first Dose of Methotrexate last night. We noticed NO side effects today. She had a friend come over and play, which was a great distraction…but really, I don’t think she noticed anything bothering her. I am hopeful that it stays this way – though I have no expectations. The medicine builds on itself.
First dose – went off without a hitch….so far.
It is time for me to educate myself about Systemic Juvenile Idopathic Arthritis…What do I know, what can I handle, how much I don’t know or where to look. Right now – all I would like to do is be sad, I’m not ready to mobilize yet. I see/read of all these families the mobilize around their sick child and pull it together and do the extraordinary…BUT I HAVE FOUR CHILDREN! It isn’t fair…but as Scar said…”life’s not fair”
